Sunday, May 8, 2022

Lyme Disease Awareness Month 2022

 It's that time of year again... time to hopefully bombard everyone with facts about Lyme Disease - awareness, prevention, & treatments (or lack of them) as well as tick awareness.


Please share my blog posts or social media posts so people have access to this vital information. 


I started this blog in 2011, and it has been a long and very twisty journey for me, with SO many things impacting my health; however when it comes to Lyme Disease in the UK, we have not advanced very much, in practical terms, for people who are ill and need treatment.


Prevention is ALWAYS better than cure, and in the case of Lyme, that is 100% true.  Lyme can be cured if it is treated immediately following a tick bite, with the correct dose of antibiotics,  but once borrelia spirochetes (the type of bacteria that causes Lyme Disease) begin to spread throughout the body, treatment becomes increasingly more difficult.  Lyme Disease experts do not speak about curing systemic/ chronic Lyme, but about it going into remission. 


The bacteria can remain in the body in a dormant state, and become active again following any kind of trauma/ illness to the body.  I personally experienced this in 2016 (resulting in treatment in 2017, 2018 & 2019) after I had a car accident at the end of 2015.


The information below is SO important. 


ALWAYS tick check after you've been outside  - even in your own garden. 

 Contrary to some 'opinions', ticks are everywhere in the UK (& in every state in the US, & have been found on every continent, including Antarctica).


Removing a tick quickly reduces the risk of the tick spreading infections. However it is NOT necessary for a tick to be attached for a specified period of time before it can transmit infectious organisms.

 Lyme Disease, caused by borrelia burgdorferi spirochetes is often accompanied by other co-infections such as babesia, erlichia, bartonella, & others. All are difficult to detect and difficult to treat.


Ticks deserve their nickname: nature's dirty needle.


Knowing how to remove a tick properly is essential - details below:


Right at the beginning of May, as if on cue, my brother-in-law found this (well fed 🤢) tick on one of their cats.





🕷 He removed it properly, with a @ticktwister.co.uk - you can see the head is fully intact.

 To remove a tick from a person or pet, grip the mouthparts, as close to the skin as possible & pull straight upwards, with fine-nosed tweezers or a specialised tick removal tool.  Do not irritate the tick (e.g. with ointment/ flames) as this can cause it to regurgitate dangerous bacteria into the bloodstream. 

Do not twist it yourself as this can cause the mouthpart to break off and remain in the skin (if using the 'tick twister' tool, it removes it effectively; carefully follow instructions on any tool you have - & add one to your first aid kit, they make removal MUCH easier).


🕷  To safely dispose of a removed tick, DO NOT BURST.  Sticky tape is a good option - as shown here. Carefully ensure the tape is firmly stuck all around the tick for disposal, or to send for testing. 

(This is now in a sealed sandwich bag, ready to be sent away. Sometimes local vets will accept ticks to send for testing. You can search online where to send it in your area.)



🕷 The lighter part of the tick shows it has fed (it's swollen with blood). If this bursts, there is a small risk of infection if any splatter gets into an open wound, or, e.g. hits your eye. Be careful. 

The size of the tick can indicate roughly how long it was attached:

(Image from CDC website, via Google)


🕷  Wash your hands thoroughly afterwards.


🕷 Make sure your pets are flea & tick treated;  but continue to check them - tick treatment is not a repellent, it slowly kills ticks as they feed.  Be aware, if ticks drop off alive, they may then feed on humans.


🕷 So... TICK CHECK! Always!

Ticks like to crawl into safe, warm crevices in the body - check EVERYWHERE.

Check kids at bathtime, & teach them how to check themselves too.

(Be aware of any tiny freckles you have - I have one on the back of my leg that has given me a fright several times in the past!! Using your hands as well as your eyes while you check will ensure you feel an embedded tick.)


🕷 Wear repellent outdoors (Autan is best in the UK) & always tick check carefully when you get home.


🕷 Remember - ticks are tiny. They also like to crawl into crevices in the body where they can hide, like under the arm or in the groin - check EVERYWHERE!




(Image also from US CDC website)





Wednesday, April 13, 2022

Fundraiser | Love Your Brain | Inverted Perspective


“The greatest danger for most of us is not that we aim too high and we miss it, but that we aim too low and we reach it.”

   ~ Michelangelo


For various reasons, it has been a long time since I have posted anything on my blog.  For a long time, I was unable to use screens due to a TBI (traumatic brain injury) I sustained in 2019, following an earlier concussion in December 2015, when my car tyre blew out.  This also caused a major Lyme relapse.  I completed Lyme treatments (2017-19) & I’m currently in remission with no Lyme symptoms, but some lingering fatigue remains.  

Throughout, I continued my shoulder rehab (watch this space, I have more to say!); I also had neuro rehab for my TBI from 2019, as well as PT treatment for my neck & jaw.

Eventually, after finding an incredible surgeon, who promised he would try to find a solution, in August 2021 (as I’ve documented on social media) I had ACDF surgery - anterior cervical discectomy & fusion (C4-C6) - to stop the discs compressing my spinal cord in my neck & to remove instability.


It’s been a hell of a decade: challenges, hard work, progress… repeat.

(Photos below.)


The quote at the top of this post is one that I have really focused on during these difficult few years.  It continues to resonate with me in everything I do.  In the past few years, mindfulness, meditation, & yoga have all played key roles in shaping my journey.  I am now hoping to continue this path by completing qualifications that will help me offer these supportive tools to others.  I’m fundraising for Love Your Brain, the organisation which offers support to people with brain injuries as well as training courses (more below).


If you know me, or have read any part of my blog, you will know that determination is just in me.  Sometimes I’m not entirely sure where it comes from - but it’s there, shoving me onwards, despite my conscious (sane, rational) brain protesting at times.  It’s not been an easy journey, & I continue on this winding path of rehab, recovery, and healing, but I have never stopped aiming high - and it has been worth every crazy moment; every effort to keep moving forward; and every annoying insistence to medics focused on ‘acceptance’ that I would not stop looking for ways to continue to improve.




There’s a lot I could - & will - write moving forward, but I am returning to my blog as my health improves enough for me to return to life and (surprise!) I decided to start by throwing myself in at the deep end…


As part of my treatment, and understanding how to live with a brain injury, I completed two Love Your Brain Yoga, Mindfulness, & Meditation courses run by Love Your Brain, a charity founded by US Olympic Snowboarder Kevin Pearce after he sustained career-ending TBIs. 

All classes are free for people living with brain injuries - including those caused by Lyme Disease.  My worlds collided in those courses.  


These classes, and the tools and skills I learned, and continue to develop, have helped me with all the health challenges I have face, and those I still live with.

Looking back several years to this post: Meditation Failure, I would never have believed where this would all take me!


My perspective has changed in many ways.  

Follow my journey @inverted__perspective on Instagram.


Diving in


Last week I made a last-minute decision to apply for a Love Your Brain Mindset course.  After completion, I will (hopefully!) be qualified to help provide the same valuable tools and support to others as I was fortunate enough to receive at a critical time.  I am also hoping to complete a LYB Yoga Teacher for TBI course in June. 


I applied to the LYB Mindset course last Tuesday, was accepted on Wednesday, started on Thursday, and have since completed 6 modules!


I've been awarded a partial scholarship for the cost of this course and I'm aiming to raise £525 ($675) to cover fees for both courses.

All funds raised will go to LYB.


If you can support me, & Love Your Brain, in any way - donations &/ or sharing my post, blog, or fundraiser link - it would be greatly appreciated.


My GoFundMe page is here: Love Your Brain Fundraiser

Fundraising aim: £530 ($675)  


All money raised will go to the Love Your Brain Foundation to support the amazing work they do around the world - in classes & online - to support people with brain injuries.


(N.B. GoFundMe automatically adds a 'tip' of 15% to your donation. This money goes to GoFundME. It is optional & you can select to opt out.)


You can read about this amazing organisation here: https://www.loveyourbrain.com/


As an extra thank you, I will enter all donors into a random name generator to pick one winner for this handmade ( - by me: gfmjewellery) Swarovski crystal, pearl, & semi-precious gemstones wrap bracelet. 






If I exceed my target, and raise extra money for LYB, I will offer a second prize draw for a custom piece of jewellery - to be completed after the course ends!



My fundraiser is now live and will run until Saturday April 16th (midnight UK time; 7pm US Eastern).

The winner will be selected via a random generator & announced on Sunday April 17th.


As for further updates, they say a picture is worth a thousand words, so here are a few snapshots of my journey to date - and I promise more blog posts coming soon!   


As always, I’ll end with a quote: 


“The secret of change is to focus all of your energy, not on fighting the old, but on building the new.”

   ~  Socrates